A Cavan woman is on a mission to raise essential funds and awareness around Motor Neurone Disease, particularly in women.
Marilyn O'Connor received her diagnosis on August 24th of this year, describing it as "one of the cruellest diseases out there" which has affected the award-winning author and director in a number of ways, including the loss of both her hands and arms.
Despite her condition, Marilyn says she is determined to keep going.
Speaking on the Joe Finnegan show, Marilyn vowed that for as long as she has her voice, she wants to use it for speaking up as a woman and a mother living with the condition.
"My mission and my reason for sharing my story is to raise awareness of MND in women," explained Marilyn.
"For every 60% of men that are diagnosed there are 40% women diagnosed; although less common it is a huge statistic. There are currently 417 cases in Ireland with Motor Neurone
disease and one person is newly diagnosed every three days."
In a bid to raise the profile of the "wonderful work" and care provided by the IMND association, the local woman has also organised a Valentine's Ball titled 'Dance While You Can' which will take place in the Cavan Crystal Hotel on the 10th of February.
"The funds will go towards MND for purchasing equipment, increasing more specialist nurses and also finding a cure through research," she said.
"I am hoping people will lend their support to help raising funds for this worthy cause and I will be setting up the links where people can send their donations through to MND directly.
"I am also posting my journey as long as I am able to talk on the MND website and I welcome you all to join me into the future and support me on my path of living the best life I can live for now."
